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Mandy_M
#1 Posted : Tuesday, July 13, 2010 10:30:20 AM Quote
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I thought you laid out 'the other side' of hospitals and the stresses some of the staff are under, very well. When I am in pain and sufferring I don't give them a thought!

Some of the members on here have been badly let down by the NHS, and the system has actually made it a great deal worse - life threatening in some cases. Some times there has been no recognition that there is a human being (the patient) involved.


My RA Dept is quite a good one, but I could not get an appointment with a Podietrist (sorry - foot person) through the NHS. I decided to look for someone to come out to our home to see my partner and me, and phoned someone advertised in the monthly free paper.

We then had a lovely Lady visit us, who it turns out works at the local Hospital - evidently, IF I had been referred, it would have been her that I would have see. She told us a little of the stress the dept is working under, and her anger at it. And this is one of the reasons that she works privately, as an extra to the NHS.

Sending good thoughts for the joints!

MandyM
Alice_S
#2 Posted : Tuesday, July 13, 2010 4:25:58 PM Quote
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Thank you, Mandy. I think that by and large the NHS does a good job but, as with any large organisations, there will be occasional problems. As for individual experience, I use the rule of threes. "Once is random, two is noteworthy and three is a pattern." Which means the first time there is a glitch I say to myself: glitches do happen. The second time, I might get a bit annoyed but just make a mental note for the future. The third time I say gleefully to myself, aha!, here's is a pattern - time for action! More seriously, I personally don't believe in making complaints - they only demoralise staff, who are most probably not to blame for what you are complaining about. But you can always ask for your issue to be discussed at the team's next clinical governance meeting.

In any case, part of me feels quite reassured when clinics run late. It means that when my turn comes, the doctor will take longer with me if I have issues or send me off after a few minutes if everything is running smoothly.

I dread to think what an atomised service will do to RA sufferers with the new government's proposals to transfer budgets to GPs. We will need to see what happens when they have to take great chunks out of their individual budgets to pay for anti-TNF treatments.

Now, here's a minor tip: ask for your next routine appointment - yes, the one in three or six months' time, to be the first for that clinic - move it to the week after if necessary. You are less likely to be kept waiting for overtime if you are first in line!

Cheers and all best wishes.

Alice

jeanb
#3 Posted : Tuesday, July 13, 2010 4:29:32 PM Quote
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Problem is that if people DON'T make complaints, how on earth will things ever change?
dorat
#4 Posted : Tuesday, July 13, 2010 4:38:19 PM Quote
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It depends what the complaint is about.
I mean, if they cut the wrong leg off, I wouldn't just say that's random and hang around waiting for the 2nd and 3rd(?) mistake.

Doreen xx
Alice_S
#5 Posted : Tuesday, July 13, 2010 4:51:19 PM Quote
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[Where's my posting??? It's gone!!!]

Thank you, Mandy.

Anyway, I was going to say, what about NRAS campaigning / talking to your councillor/MP? joining user representative groups in your local PCT or hospital Trust (even aim to be on their Trust Board)? / writing to the local press? /etc., etc.

But you have to know that you may well rock the boat and upset people when you rise your head above the parapet. I personally don't have the energy to campaign at present but if any of you want to go for it, I'll support you!BigGrin Anyway, we are all doing our bit here, aren't we?

The issue is about separating complaints about malpractice with complaints about resources. Making complaints about individuals when it's about the latter just demoralises clinicians who know they are working in a sub-funded service and doesn't do us any favours as patients.

Alice

PS I chuckled with the joke about the third leg.
jeanb
#6 Posted : Tuesday, July 13, 2010 5:12:52 PM Quote
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I do take your point, Alice and am not trying to be difficult. However, when you have the severe RA Lyn has, and also have neutropenia and feel like death warmed up, it's very difficult when everthing seems to conspire against you! I know - I've been there. I would never complain about the department staff, who do a superb job. However, an apology for missing notes, lateness of appointment etc would go a long way towards calming and reassuring patients who are often extremely stressed, especially at emergency appointments.
dorat
#7 Posted : Tuesday, July 13, 2010 6:12:06 PM Quote
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Sometimes the department staff want us to complain, because they don't like the way things are being done. They hope that the more people complain, the quicker things will improve for them.

At least there may be more resources for patients now that the PCTs and "managers" are being got rid of. They are the ones draining NHS resources.

Doreen xx
Alice_S
#8 Posted : Tuesday, July 13, 2010 7:08:13 PM Quote
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If only, Doreen... I am afraid I have little hope that the government will divert funds from the over-managed NHS to patient care.
MrsWoman
#9 Posted : Tuesday, July 13, 2010 8:28:35 PM Quote
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I worry about this new process. My GP doesnt know much about RA and shes quite conservative with treatment but I do find her supportive. So my worry is if she has to dole out the budget to patients my interests wont be best served. My experience with the NHS is although most staff strive to do a good job the system doesnt seem to be able to cope with the requirements. I have had to change my hospital due to my being unhappy with my care, the events were too many to mention. Unfortunately there is such a disconnect, that this new process will just add to the problems.



Mandy_M
#10 Posted : Wednesday, July 14, 2010 10:20:58 AM Quote
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I do belive in making complaints - to the person who can change it. If I get blocked by a receptionist, I phone into the Practise Manager, and generaly get my way - or an explanation I can take on board. I do now read the minutes , and attend Trust meetings as I like to add my five peneth and at least FEEL that i have been heard.

Meanwhile, we will just have to wait and see on the politics. Sometimes, change is good.
Kathleen_C
#11 Posted : Wednesday, July 14, 2010 2:45:02 PM Quote
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jeanb wrote:
Problem is that if people DON'T make complaints, how on earth will things ever change?



I totally agree. My GP not only insisted I put a complaint about the rheumy dept in writing - he wrote one too. He simply said that if things weren`t working, the rheumy dept needed to know.

Kathleen x

amanda_lewin
#12 Posted : Wednesday, July 14, 2010 4:09:00 PM Quote
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I agree with you re complaining- we must make our voices heard and sometimes one just has to kick up a fuss in order to receive the treatment they deserve.

The second time I saw my rheumy on the NHS (which wasn't the rheumy but his registrar who didn't even read my notes!) I was examined behind some curtains along the corridor!! I was SO upset I decided to make a complaint to my GP and then move to private care. I know this isn't an option for others (we have to pay as I am not covered and cannot afford it really, it is a sacrifice).....but my other option was to remain on the NHS and refuse to see anyone else except my 'chosen' rheumy, ie wait an hour or three longer but get to see him?



Amanda
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